"Vanessa lives life on her own terms -- one day at a time, every day to its fullest. She can't afford to think about whether she has the same fatal genetic condition as her older sister. After all, she has way too much to do, traveling the globe and showing millions of YouTube followers the joy in seizing every moment. But lately, life has been anything but pure joy, and travel has come to an abrupt halt. After her younger step-sister drops off an...

Stephen Heywood was twenty-nine years old when he learned that he was dying of ALS - Lou Gehrig's disease. Almost overnight his older brother, Jamie, turned himself into a genetic engineer in a quixotic race to cure the incurable. This book is a powerful account of their story, as they travel together to the edge of medicine. Some descriptions of sex and some strong language. 2004.

Over the course of four celebrated works of fiction and almost forty years, Richard Ford has crafted an ambitious, incisive and singular view of American life as lived. Unconstrained, astute, provocative, often laugh-out-loud funny, Frank Bascombe is once more our guide to the great American midway. Now in the twilight of life, a man who has occupied many colourful roles-sportswriter, father, husband, ex-husband, friend, real estate agent-Bascombe...

A once accomplished concert pianist, Richard now has ALS. As he becomes increasingly paralyzed and is no longer able to live on his own, Karina becomes his reluctant caretaker. As Richard's muscles, voice, and breath fade, both he and Karina try to reconcile their past before it's too late. An exploration of redemption and what it means to find peace inside of forgiveness.

"Stephen Hawking has been an iconic figure in physics for the last half a century, making many groundbreaking discoveries on the nature of the universe. Yet while his mind roams to the farthest corners of reality, his body has become increasingly trapped by the advance of Lou Gehrig's disease, which has bound him to a wheelchair, without speech or movement except for a few facial muscles. Told in his youth that he would not live past his 20s, Hawking...

After returning home from a year abroad, Marissa's husband, Harvey was diagnosed with ALS. The disease progressed quickly and Marissa was soon consumed with caring for Harvey while trying to keep life as normal as possible for their children.